Several times this week I have literally found myself just sitting alone in a room with Dalton just staring at him. I am trying so hard to soak up every single minute I can with him and remember them perfectly in my head. If this experience has taught me anything it is to never take anything for granted because with the blink of an eye it could be all gone. I remind myself of that daily and that is what helps me get through those most sleep deprived times. Whether its a gassy smile, a giant burp, or when he grabs my hand to help hold his binky in his mouth- I love every single thing about him.
God has given us the opportunity to have time with Dalton and for that we feel so blessed. I often wonder why we were chosen to be given time with our son, when so many of our new friends were not. He could have easily been welcomed into heaven before we felt he was ready but he wasn't. We were given the chance. The chance to know nothing but love and become a man of God. His road ahead is long and will not be easy for any of us involved. Knowing that God is guiding us on how to raise him and what decisions are best for him, gives me the most comfort.
Everyone always says that God will not give you anything you cannot handle and when we found out Dalton's diagnosis I wasn't sure that was so true. I remember feeling like there was no lower feeling in this world, but giving my pain over to God helped me to overcome and remember that even with all the pain blessings are still possible. They may not be blessings that most people hope for but the little moments are our blessings. If there is anything that I can teach someone through all of this is to be thankful for what God has given you and if you put your trust in His plan you will find comfort even during your darkest days.
This song by Laura Story has helped me so much, I listened to it all through my pregnancy and even in the delivery room. When it was on in the delivery room, Jonathan and I prayed for the strength for whatever was about to come our way. We knew that no matter what our outcome we had been blessed to have 9 months with Dalton inside of me. It has been since then that we have been counting our blessings by the minute and being thankful for what we ARE being given. It's hard not to think about the future and it seems pretty daunting at this point. But we are both learning to live for the moment and know that no matter how much we try and plan for, only God knows what is in store for us.
Here are a few pictures from Dalton's first week at home! Enjoy!
Laura Story- Blessings
Dalton's great Uncle Randy and Gigi
My monkeys.
Holding his binky.
Our little sock monkey.
Gigi and Dalton mastering the feed...without the tube!
Kalee and Matt came to visit!
You don't know me and I only know you through a mutual friend. I have been praying intentionally for your family and the little angel our Lord has placed in your care. No matter what, you have stepped up to your ultimate assignment. I watch in awe and praise our mighty Father for blessing me with your inspiring journey of faith and total dedication to a little boy who s touching lives and bringing people to Christ in a way never dreamed possible. Thanks for your courage to tell your story as it unfolds.
ReplyDeleteThinking and praying for you. My little boy is two and I have taken him for granted. Your story has inspired me to spend quality time with him. Thank you for your strength and may God bless you with many more days with little Dalton. Thank you!
ReplyDeleteWhen our daughter was just two weeks old, she became very sick and was in the hospital for 10 days. After we brought her home, I vowed to not take another day for granted. Although you are walking a very different road than most, you are wise and strong!! Every moment you will fall more in love with him, there is no denying it. You seem to know that each day is a gift (the "present"). Be in it, live it and love God. And, if you don't leave the house, who cares! Dalton is your home now.
ReplyDeletei learned of you through a mutual friend, i have tried to keep updated but with my life i got behind, i went to your sight to read of your maricle... i sat in awe to learn your sweet dalton is home with you i cried tears of joy so i can only imagine how you as his parents and family feel, i will continue to pray Gods blessings over you all...
ReplyDeletei know u do not have much time to write on yr blog but i enjoy reading them and hearing about how dalton is doing i hope to see him one day am one of your husband empolyer and i ask him all time how is dalto doing he is just a joy to see in all the pic u put in your blog hope to see him one day in person.
ReplyDeleteI learned about you and family through a mutual friend. Your story inspires me every single day. I pray that you and your precious angel are blessed with many memories together. Your strength and love is amazing. May your courage and committment continue to grow stronger every day. God Bless! ~Kristen
ReplyDeleteI was a latecomer in finding your blog but have kept up on it for a month or so now. It is amazing to hear about how wonderful Dalton is doing! I'm sure that he has all of you wrapped around his tiny finger!!! :) He is so adorable!
ReplyDeletewww.fundly.com/devotionstodalton
ReplyDeleteI check in every day to see if you have updated your blog. While I have followed your story for quite some time and would love to know how you are doing, I am also happy to think that you are too busy spoiling that boy to worry about posting. I am a stranger who prays for your family, Dalton has touched my heart. All the best to your sweet family.
ReplyDeleteKara G.